Resources

Autism

A comprehensive resource, support, and community outreach site for families of children with autism: autismspeaks.org

Autism Society of Georgia

autismsocietyga.org

Cerebral Palsy

Cerebral Palsy (CP) informational guide regarding diagnosis, types of CP, treatment options, community resources, legal resources: cerebralpalsyguide.com

Cleft Lip/Palate

Defines the types of cleft lip and palate, feeding protocols, and care & treatment plans from the cleft/craniofacial specialists: Information at Healthy Children.org

Down Syndrome Association of Atlanta

The DSAA is the local chapter of the National Down Syndrome Association and provides a wealth of resources for parents, including New Parent Resources, local support networks, available grant and scholarship funding, and much more: dsaatl.org

Parent Guide to Torticollis

This resource defines torticollis, signs and symptoms of torticollis, and recommended treatments: kidshealth.org/en/parents/torticollis

Plagiocephaly & Torticollis

Information at Healthy Children.org

Infant Failure to Thrive

Provided by American Academy of Pediatrics: Information at Healthy Children.org

Premature Infants

Importance of Early Intervention Services following discharge from the NICU: Information from March of Dimes

Importance of Tummy Time for Infants

Two excellent resources explaining the importance of tummy time for a baby’s development:

American Academy of Pediatrics Resource

American Occupational Therapy Association Resource

Katie Beckett/Deeming Waiver for families of babies with disabilities:

Established in 1982 under the Tax Equity and Fiscal Responsibility Act/TEFRA (P.L. 97-248), the Katie Beckett Medicaid Program (KB), permits the state to ignore family income for certain children who are disabled. It provides benefits to certain children 18 years of age or less who qualify as disabled individuals under §1614 of the Social Security Act and who live at home rather than in an institution. These children must meet specific criteria to be covered.

Qualification is not based on medical diagnosis; instead it is based on the institutional level of care the child requires. Title 42 Code of Federal Regulations outlines the criteria used to determine eligibility.

Go to application

View Katie Beckett Fact Sheet

A guide to Medicaid Waiver programs in Georgia

View the Guide

Georgia Early Intervention Program/Babies Can’t Wait

The mission for Part C/Babies Can’t Wait:  Part C early intervention builds upon and provides supports and resources to assist family members and caregivers to enhance children’s learning and development through everyday learning opportunities for 0-3 age population: dph.georgia.gov/Babies-Cant-Wait

Parent to Parent of Georgia

Parent to Parent of Georgia offers a variety of services to Georgia families of children with disabilities or special healthcare needs, including a special needs database to locate providers in your community, support services, & educational opportunities and trainings for parents: p2pga.org

FOCUS+Fragile Kids of GA

FOCUS (Families of Children under Stress) was started by two parents of children with special needs.  The organization provides emotional support, respite care, community resources, and equipment grants for medically fragile children: focus-ga.org

 

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